Stephanie Solomon Cargill is Assistant Professor of Health Care Ethics at the Albert Gnaegi Center for Healthcare Ethics at Saint Louis University with a secondary appointment at the Center for Clinical Research Ethics at Washington University's Institute for Clinical and Translational Research. She holds a PhD in philosophy from Emory University with a thesis that focused on the social and feminist epistemology of science. From 2008-2010 she was a postdoctoral fellow at University of Michigan's CTSA-funded Michigan Institute for Clinical and Health Research where she worked in the Research and Integrity Core.
Dr. Cargill's areas of expertise include Institutional Review Board policy, research ethics with vulnerable populations, and collaborative health research methodologies involving community partners. She has done extensive theoretical and practical work on research ethics and community-engaged research, especially in the areas of biobanking consent and policy. She has published and presented on the importance and role of the public in scientific and medical decision-making, including as lay members on IRBs and members of Community Advisory Boards. She has facilitated several community focus groups in deliberative democracy workshops and sat on multiple Community Advisory Boards. Her most recent work has been to develop a research ethics training for community partners in research that translates IRB requirements into a language and cases that are more appropriate for research done by community partners in community settings.
- Pilot study comparing IRB community members and CAB members' views on board dynamics and research ethics.
- Ethical Protections in Community-Engaged Research: A Training Course for Community Research Partners
- Internal Report on challenges of use and oversight with UM's E-research program
- Design and Evaluate Biobank Consent for University of Michigan's Michigan Institute for Clinical and Health Research
- “Recruitment for early phase clinical trials: salvation or subterfuge?” Otolaryngology Grand Rounds SLU. April 2015.
- “Research Ethics” talk to SLUCOR PhD students. March 2105.
- “Education or Advocacy in Scientific Outreach” Washington University RCR Series. January 2015.
- Interview, reported in http://www.theinvestigativefund.org/blog/1997/mining_genetic_data_for_profit/. June 2014.
- “Role Conflicts in Community-Academic Research Partnerships” CCPH 13th International Conference, Chicago, IL. May 2014.
- “We got (serious) game for community research!” CCPH 13th International Conference, Chicago, IL. May 2014.
- “Respect and Paternalism in Research” HRPO Ethics Series, Washington University, St. Louis, MO. March 2014.
- “Delivering Research Ethics Education: Strategies for Training Community Research Partners” ASBH 15th Annual Meeting, Atlanta GA. October 2013.
- “Ethical/Design Issues in Community Engaged Research” Breakout Session, Science of Community Engaged Research: Future Directions, CTSA Community Engagement Face-to-Face, Bethesda, MD. August 2013.
- “Informed Consent in the Context of Health/Research Illiteracy-What can we do?” HRPO Ethics Series, Washington University, St. Louis, MO. August 2013.
- “A Nationally Implementable, Locally Deliverable Research Ethics Training Workshop for Community-Based Collaborators” Poster Presentation, Advancing Ethical Research Conference, PRIM&R, San Diego, CA. December 2012.
- “What can Biobanks learn from Advance Directives in Clinical Medicine?” ASBH 14th Annual Meeting, Washington DC. October 2012.
- “Informed Consent in the Context of Health/Research Illiteracy-What can we do?” AND “Vulnerability and Undue Influence-How do we ensure research participation is voluntary?” Keynote speaker at 5th Annual Human Subject Protection Conference, Carle Research Institute Champaign Urbana, IL. September 2012.
- “Ethics Protections Training for Community Partners as a Method to Improve Research” Methods, Metrics and Outcomes: Evaluating the Success of Community-Engaged Research, Bethesda, MD. August 2012.
- “Ethics and Issues related to the use of Emerging Technology in Research” HRPO Ethics Series, Washington University, St. Louis, MO. June 2012.
- “Panel Responses on Research and Ethics” Stories of Engagement: Building Partnerships in Health Research, Ann Arbor, MI. April 2012.
- “Ethical Protections in community-engaged research: a nationally implementable, locally deliverable training program” Translational Science 2012: Improving Health Through Research and Training, Washington DC. April 2012.
- “How should we communicate about commercial involvement of Biobanks?” Clinical Research Ethics Key Functioning Committee Face to Face Meeting, Washington DC. April 2012.
- “Ethics of Biobanking: The Views of a National Working Group” Advancing Ethical Research Conference, PRIM&R, Baltimore, MD. December 2011.
- “Community/IRB Communication: How can we make this work?” Advancing Ethical Research Conference, PRIM&R, Baltimore, MD. December 2011.
- “Negotiating an Alternative IRB training” Communication in Community-Engaged Research, JERHRE, Houston, TX. November 2011.
- “Can they Volunteer? Coercion and Undue Inducement in Vulnerable Populations” HRPO Ethics Series, Washington University, St. Louis, MO. October 2011.
- “Mind the Gap: An Advanced Directive/Surrogacy Model for the Relationship between Biobanks and Tissue Donors” ELSI Congress: Exploring the ELSI Universe, University of North Carolina, Chapel Hill, NC. April 2011.
- Ethics Panel at ACRT/SCTS annual meeting. April 2011.
- “The rationale for public deliberation in health policy and bioethics” Public Deliberation, Ethics and Health Policy Symposium, University of Michigan. September 2010.
- "Newborn Screening and Biobanks: Lessons from Michigan." 10th World Congress of Bioethics, Singapore. July 2010.
- "The Views and Experiences of Community members on IRBs and CABs: Preliminary Findings" University of Michigan Bioethics Research Colloquium. May 2010.
- "Designing human subjects protection training for community partners engaged in Research: Challenges and Lessons" JERHRE/CCPH/UT Center for Public Policy Community-Based Participatory Research Workshop "Reducing Barriers Between Researchers and Communities", UT Houston. April 2010.